Treatment resistance is not terminal,
The case of Tom by Michael D. Rosberg, Ph.D.

 At the beginning of my clinical internship,  when I "didn't know any better," I had the  opportunity to work with a patient who had  just the sort of history and personality that  leads most professionals to avoid them. At  the time, Tom age 40 (1982), had at least a  22 year history of schizophrenia. For the  majority of those years Tom lived in  psychiatric hospitals, and occasionally in  board and care homes.

 Prior to the time of  his admission to the Anne Sippi Clinic, Tom  was hospitalized at least 20 times, with his  stay in those hospitals lasting typically from  two to twelve months, including one ten year  period at Atascadero State Mental Institution;  these hospitalizations were often followed by  a 2 month period of non-treatment in a board  and care setting followed by another  hospitalization.

 In his medical records it stated that  Tom's first break occurred in his late teens (a  common time for the first signs of  schizophrenia) triggered perhaps by family  and academic pressures in his last years of  high school. Tom's childhood was marred by  abuse and domestic violence. When asked  about this he stated that "my parents drove  me insane and then my father deserted me  because of my insanity." Tom had not heard  from his father for ten years prior to his  admission, and his mother had died of  complications caused by a lifetime of chronic  alcoholism. This family description is not  meant to blame his or any family for the  illness schizophrenia, but rather, to give  adequate background to the social and  familial issues surrounding this person's  manifestation of this illness.

 In July 1982 Tom was referred to the  Anne Sippi Clinic after one of his many  hospitalizations, this time at Patton State  Hospital in Southern California. It should be  noted however that although Tom has a  history of paranoid schizophrenia the most  consistent reason for his many long  psychiatric hospitalizations had been violent  acting out and delusional fits of rage. Tom  reported that this most recent hospitalization  resulted from a flair up between himself and  one of the residents at a board and care home  where he was residing. He elaborated on this  by stating that he "was being made to look  crazy by people who were controlling his  mind." Although at other times he admitted  his hospitalization was as a function of  uncontrollable anger.

 Tom is a very large man,  approximately 6' 7" tall. At the time of his  admission, Tom's physical appearance was  very disheveled, he seemed angry and  withdrawn, and indicated that he felt any  problems he might be having would be  caused by others. After a short period of  adjustment he began expressing loud angry  thoughts seemingly unaware of others, often  slamming the door and yelling at the sky  statements such as "I hate God," and " I am  going to the lake of fire." Tom was actively  psychotic, he was verbally hostile with  patients and staff, and had almost daily fits of  rage where he would throw pool balls, chairs  and almost anything in reach. His sleep was  fitful and he appeared agitated in the hall. He  frequently expressed paranoid thoughts, and  in the course of therapy was physically  confrontive and regressed. In all, Tom  seemed an extremely angry, delusional,  disorganized man, who withdrew into his  own thoughts in response to internal cues.

 Clinically speaking, Tom's mental  status at admission revealed loose associations  with occasional lapses into blocked thought  processes. He admitted to paranoid  delusions, perhaps best described as a feeling  of alienation and an amorphous sense of peril.  His affect was at times appropriate, and at  times loud and angry. His intellectual  abilities seemed above average with intact  long and short term memory, and he was able  to offer insight into his own behavior, though  lacked the ability to integrate this insight  when feeling pressured or angry. So here  was Tom, with all the symptoms of severe  schizophrenia and the character flaws that  come from a hard life and many years in  hospitals where because of his size and angry  demeanor he was avoided, isolated, and  punished for his psychological problems. So  there I was a new therapist, who was full of  the expectation that it was up to me to help  Tom, believing that Tom was not a failure,  but that his previous treatment's had failed.  Perhaps it's the new therapists who know  what seasoned therapists must constantly re- learn, it is up to us to provide care and  hopeful treatment to our patients, even if it is  difficult!

 Of course, with the kind of history  Tom had, treatment started with much  objection. In order to spend the necessary  time with Tom (and this was considerable), I  was forced to pursue him not necessarily in  the office, but in the hall, the recreation  room, his room, and all around the grounds.  I realized quickly that for treatment to be  effective with this isolated person it was vital  that I form a relationship with him, a  relationship which would serve to create a  buffer when those internal cues intruded and  Tom was acting out. Over the next several  months, I began spending more and more  time with Tom often responding to his anger,  and meeting his aggression head on. This  proved to be one of the most impactful  aspects of working with this difficult patient.  It seemed that Tom had, in other setting's,  been placed in isolation when he became  angry. There, punishment had replaced  human interaction, now it was up to me to  reverse that pattern.

 Unfortunately, Tom had developed a  strong delusional system. Not only did he  blame others for his problems, but Tom felt  that psychotherapists in particular were  "working with the devil," to undermine his  happiness. This was a difficult aspect of his  psychosis involving trust. Tom had been let  down by many of his previous therapists,and  Tom was not about to readily trust another.  In my effort to overcome this difficult  resistance I was tested many times. There  were many late night sessions, much acting  out behavior, and the time commitment was  tremendous. As a new therapist with much to  learn, I was forced to rely on determination,  and if I could help it, I was not going to fail  with one of my first clinical cases.

 Determination is a powerful thing and  gradually, with many steps forward and steps  back, it began to result in some behavioral  improvement. Tom's rage began to dissolve,  and he became a more cooperative patient.

 As treatment continued Tom was seen  in individual psychotherapy five days per  week, group therapy daily, movement  therapy, exercise, and when his impulse  control had improved, daily outings to  mountains, museums, movies, and most  importantly the library. Tom was a very avid  reader. As time passed he made progress in  many spheres including psychotic symptom  reduction, interpersonal relations, personal  hygiene, and most importantly rage  reduction. Tom's therapeutic relationships,  had dramatically, been replaced with  productive healthy relationships. As a result  of a strong positive transference between  himself and his therapist, Tom began a  gradual re-integration of social skills and self  awareness.

 Treatment with Tom continued for  several years, there were intermittent  psychotic episodes, but with less of the  ferocity of his previous years. Tom was  reeducated in social skills and eventually  moved to a board and care home in the  community where he lives today. For him a  lifetime of recurrent psychiatric  hospitalizations was halted. He has not seen  the inside of a psychiatric hospital since.

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